They should do so in the context of local and national priorities for funding and developing services, and in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities.Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties.THIS wasn’t what you had in mind for your happily ever after, was it? At times you will feel both helpless and powerless. Our society does little to have you believe that just there for your wife as a shoulder to cry on, or as a reliable presence in her life who listens and cares, is often all you CAN do, and often all your wife/partner needs from you – and that that is okay!You being okay with the fact that sometimes, in life in general, and especially when your partner has CFS /ME, you will feel helpless and powerless, will go a long way to keeping you in the right frame of mind to be the loving partner to your wife/partner that she needs.This guideline includes recommendations on: The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available.When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service.I have always wanted to write some blogs about the challenges faced by partners of people with CFS / ME.
But unlike you, she FEELS the pain, the fatigue, the digestive problems, the bowel problems, the brain fog and all the other ugly symptoms of this ill-defined, mysterious illness. Acknowledge guilt or anger or frustration if that’s what you’re feeling, but just don’t let it tear your relationship apart (more on that later).
This guideline covers diagnosing and managing chronic fatigue syndrome (CFS) which is also known as myalgic encephalomyelitis (ME) (or encephalopathy).
It aims to improve the quality of life for people with CFS/ME by setting out the care and treatment options that should be available for them.
Because once we acknowledge a feeling and allow it to just be, it usually dissipates and has little control over us. When we feel helpless and powerless, if we can’t just be with those feelings and allow them to pass, we often go on a warpath to find an answer to fix the problem.
I wrote a whole , which you might find useful if you apply it to accepting the fact that your partner is ill and that, at this stage, and at this moment, it is as it is. Every person with CFS / ME has done the same, and continues to do it on some level.